Chandra Wisnu, the Indonesian man known as the "Bubble Skin Man," has spent the last 25
years trying to find a cure for the bizarre condition that caused bubble-like tumors to erupt
on his body.
Now, at last,he may have found the cause, thanks to Maryland-based dermatologist
Anthony Gaspari, and while no cure exists, he may be able to improve his quality of life.
Gaspari flew to Indonesia to examine Wisnu and his family.
The diagnosis: an extreme case of Neurofibromatosis type I (NF-1), a tumor disorder that is
auased by a gene malfunction and causes non-cancerous lumps.
The disease is genetic and affects up to one in 2500 people.
Th
e lumps first appeared on Wisnu when he was 19, spread to his back by age 24 and
covered his entire body by the time he was 32.
The 57-year-old Indonesian man has been going to
doctors and alternative healers for
years. However, until now he had been unable to find out the cause of the tumors -- or to
get relief from the itching.
"One alternative healer cut out fatty tissue and told my father to bury it under a banana
tree," Wisnu said on in a documentary. "But there was no improvement."
He has since resorted to making the best of his life despite his skin disease that alienates
him from people. Thankfully, his wife of many years has stuck by him, despite his
condition.
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